Haemophilia 2003; 9(3):317-324
Reproduced with pemission of Blackwell publishing
This is the pre-peer reviewed version of the following article: C. Clemente, J.Tsiantis, I. Kolvin et al, "Social adjustment in three cultures: data from families affected by chronic blood disorders. A sibling study", Haemophilia, Volume 9, No. 3, pp. 317-324 (Wiley-Blackwell, 2003); which has been published in final form at: http://onlinelibrary.wiley.com/doi/10.1046/j.1365-2516.2003.00768.x/abst...
This study explores the rate of psychosocial dysfunction in affected and unaffected children from families with haemophilia or B-thalassaemia, as part of a cross-sectional, multi-centre study into the resilience of 115 families with blood disorders. Sociodemographic and developmental data were collected from the parents using a standardised and semi-structured interview format, and medical data were obtained from the clinician.